Find links to the Down Syndrome/Genetic Conditions Information Acts passed in each state and the corresponding department of health resources. Almost all states recommend our resources as part of their state fact sheets.
State Laws and Fact Sheets
Below are links to the states where Down Syndrome Information Act laws have been passed and the corresponding state information required by the law:
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Delaware
DE State Law
DE State Fact Sheet (PDF): According to the Delaware Academy of Family Physicians, “The Division of Public Health, in partnership with the Down Syndrome Association of Delaware, is providing access to up to date information in two booklets available to health professionals online … The pamphlets are available free of charge by request from the website: www.lettercase.org.”
Florida
FL State Law
FL State Fact Sheet
Idaho
ID State Law
Illinois
IL State Law
IL State Fact Sheet
Indiana
IN State Law (PDF)
IN State Fact Sheet (PDF)
Kentucky
KY State Law (DOC)
KY State Fact Sheet
Louisiana
LA State Law
LA State Fact Sheet
Maine
ME State Law
ME State Fact Sheet
Maryland
MD State Law (PDF)
MD State Fact Sheet
Massachusetts
MA State Law
MA State Fact Sheet
Minnesota
MN State Law
MN State Fact Sheet
Missouri
MO State Law: Mo.Rev.Stat. Sec. 191.923, 2007
MO State Fact Sheet (PDF)
Nebraska
NE State Law
NE State Fact Sheet (PDF)
New Jersey
NJ State Law
State Fact Sheet: Not Yet Available
Ohio
OH State Law
OH State Fact Sheet
Pennsylvania
PA State Law
PA State Fact Sheet (PDF)
Tennessee
TN State Law (PDF)
TN State Fact Sheet
Texas
TX State Law
TX State Fact Sheet
Utah
Utah State Law
Utah State Fact Sheet
Virginia
VA State Law
State Fact Sheet: Not Found
Washington
WA State Law (PDF)
WA State Fact Sheet
Down Syndrome Information Templates for State Departments of Public Health
State Down syndrome Fact Sheet Template
Fact Sheets from the Center for Dignity in Healthcare for People with Disabilities:
Prenatal Laws: Down Syndrome Information Acts
On October 8, 2008, the “Prenatally and Postnatally Diagnosed Conditions Awareness Act”2 was signed into law “to increase the provision of scientifically sound information and support services to patients receiving a positive diagnosis for Down syndrome or other prenatally and postnatally diagnosed conditions.” Unfortunately, the federal law was never funded; therefore, several states have proposed and/or passed similar legislation. The Center for Dignity in Healthcare for People with Disabilities (CDHPD) designed this fact sheet as a resource for people to quickly find the Down syndrome information dissemination requirements in their state’s statutes and, where statutes do not exist, their state’s legislative history.