Growing Up In Holland: A Sibling’s Report from the Front Lines by Jenni Newbury, NDSC Keynote, August 2011 Reprinted with permission from Jenni Newbury: “When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy…After months of eager anticipation, the plane lands and the Read more…
Expectant parents have many concerns, including their other children. Parents ask themselves hard questions such as, “Will my other children be prevented from achieving their dreams and having a normal life?” Our pregnancy book references the research on positive impact on siblings, but Jennifer Meyers Bekins, MS, CCC-SLP, a speech Read more…
Our pregnancy book focuses on how to tell siblings a child with Down syndrome is on the way, how to answer their questions, and how to find resources. The book includes suggestions for wonderful films, books, and support groups to help you through that process. Our Resources See also: Preparing Your Read more…
A decision to share the news can be a difficult one for some expectant parents. Some tell without a plan, while others craft their message. They often have to decide what to tell loved ones, how to share the news, when to tell, and what to say. Sometimes the reaction Read more…
Our book, “Diagnosis to Delivery,” addresses the emotional impact of diagnosis, and, for most expectant parents, this is an emotionally volatile time. However, many expectant parents progress forward to the extent that they are excitedly anticipating the birth of their baby. Sometimes there are parents whose difficult days were few or barely Read more…
Sometimes when in the stress of pregnancy post-diagnosis, a negative comment can send us reeling, and may actually drown out the many positive comments we hear. However, there are extraordinary people out there. People who rise to the occasion and give a piece of themselves to give genuine, loving support. Read more…
Pregnancy post-diagnosis is often a blur of medical appointments, especially late in pregnancy. Expectant parents receiving co-care from several health care professionals may see multiple doctors in an obstetrics practice and multiple doctors in a maternal-fetal medicine practice. There may be a lists of tests, lists of questions, scraps of Read more…
There are lots of articles out there praising parents as superheroes for raising children with Down syndrome or other conditions, but what if you’re a mom or dad who’s perfectly average? What if you’re the kind of parent who usually has to beg forgiveness from the room mom for forgetting Read more…
Cuando los futuros padres se enteran de que están teniendo un bebé con síndrome de Down, a menudo dicen que se sienten aislados y solos. Para las familias que hablan otros idiomas, el aislamiento puede ser aún más profundo en su búsqueda de recursos traducidos y conexiones con otros padres. Read more…
Down Syndrome Pregnancy is also part of the Lettercase National Center for Prenatal and Postnatal Resources which hosts a prenatal medical outreach program for local organizations who want to provide resources for medical providers and support to expectant parents. The Down Syndrome Prenatal Outreach Program is used by over 80 Read more…