Growing Up In Holland: A Sibling’s Report from the Front Lines by Jenni Newbury, NDSC Keynote, August 2011 Reprinted with permission from Jenni Newbury: “When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Read more…
Expectant parents have many concerns, including their other children. Parents ask themselves hard questions such as, “Will my other children be prevented from achieving their dreams and having a normal life?” Our pregnancy book references the research on positive impact Read more…
Our pregnancy book focuses on how to tell siblings a child with Down syndrome is on the way, how to answer their questions, and how to find resources. The book includes suggestions for wonderful films, books, and support groups to Read more…
A decision to share the news can be a difficult one for some expectant parents. Some tell without a plan, while others craft their message. They often have to decide what to tell loved ones, how to share the news, Read more…
Our book, “Diagnosis to Delivery,” addresses the emotional impact of diagnosis, and, for most expectant parents, this is an emotionally volatile time. However, many expectant parents progress forward to the extent that they are excitedly anticipating the birth of their baby. Sometimes Read more…
Sometimes when in the stress of pregnancy post-diagnosis, a negative comment can send us reeling, and may actually drown out the many positive comments we hear. However, there are extraordinary people out there. People who rise to the occasion and Read more…
Pregnancy post-diagnosis is often a blur of medical appointments, especially late in pregnancy. Expectant parents receiving co-care from several health care professionals may see multiple doctors in an obstetrics practice and multiple doctors in a maternal-fetal medicine practice. There may Read more…
There are lots of articles out there praising parents as superheroes for raising children with Down syndrome or other conditions, but what if you’re a mom or dad who’s perfectly average? What if you’re the kind of parent who usually Read more…
Cuando los futuros padres se enteran de que están teniendo un bebé con síndrome de Down, a menudo dicen que se sienten aislados y solos. Para las familias que hablan otros idiomas, el aislamiento puede ser aún más profundo en Read more…
Down Syndrome Pregnancy is also part of the Lettercase National Center for Prenatal and Postnatal Resources which hosts a prenatal medical outreach program for local organizations who want to provide resources for medical providers and support to expectant parents. The Read more…